Skip to main content

Beware of permanent eye liner and tattoos!

A topic came up for discussion this week on the HPS Adults listserv. What can I say, you never learn everything there is to know about HPS. The discussion concerned getting permanent eye liner applied. Eye make up in particular can sometimes be a little tricky to put on if your vision isn’t so great. Now, some places are offering the option to have eye liner put on for good.

But Marisol, one of the women on the listserv, advised that NIH had warned her against trying this. Curious, I followed up with Kevin O’Brien, the nurse practitioner at the NIH that works with HPS adults. Kevin confirmed the warning.

It seems that besides the other hazards of things such as permanent eye liner or tattoos, such as getting hepatitis etc., some of the inks used contain metals. This is problematic should you need medical imaging studies such as an MRI. Kevin advised that many MRI places won’t do MRIs on people with permanent cosmetics or tattoos.

I’m not an expert on either of these things. Frankly, I considered getting a tattoo in college for all of five seconds. This was before I knew about HPS. Remembering the disaster getting my ears pierced had been (they bled for a long time, didn’t heal right, and I ended up having to have a ear ring surgically removed) – I decided perhaps this just wasn’t the smartest thing I could do.

But, regardless, it’s yet another reason it’s not a bad idea to know for sure whether you have HPS. HPS’ers are far more likely to need studies like MRIs. And, hey, if you’re thinking about getting either one of these things done – consider yourself warned. At least ask lots of questions and check with your doctor! If you have HPS, you might want to think twice.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria