Greeting the New Year with the sniffles

After marveling at the symptom and drug log I keep for NIH, noting happily how few sinus infections I’ve had and how much better my tummy issues have been - I think I jinxed it.

I’ve spent New Year’s Eve and New Year’s Day with the sniffles, on and off low grade fever and sore throat. It would be nice to have one NIH trip without some other medical issue going on.

I’ve been blowing my nose so much that now it’s all chapped and I’m doing my Rodoff impression.

I’ve also been loading “the new baby.” It’s amazing how many active projects I have going and how many things I need to load onto the new machine.

So much of what I do on the computer is by memory. It takes some real practice to learn a new computer.

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Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

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Living on the frontlines

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