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For those interested in reading about living with lung disease

Last night Ana sent me the following link. I couldn't get it to work immediately and had decided to put it in my "things to do later" pile. After all, things are quite busy behind the scenes in HPSland right now. I'm unable to even respond to everyone's e-mail right now. But then I called Karen as she's been helping me with a photo issue I'm having with the newsletter.

Karen had seen the link that Ana was trying to share and urged me not to put it in the "things to do later" pile. So, I didn't.

And I'm so glad I didn't!

This MySpace page was created by two young ladies who are suffering with rare lung disease. They've set up this page collecting the stories of people who have rare lung diseases.

It's what I've wanted to do for some time now. I said this early on here on this blog, but it's been a while and thus I suppose I should say it again. I would love to post the stories of other HPS'ers - lung disease or not - so that we can have a growing archive of people's stories. These stories are so useful when we're off speaking in public at medical conferences or trying to generate press interest. And, I think it's so valuable just to record our collective experiences.

So, if you're interested in reading about people with all sorts of rare lung diseases, check out this site: http://www.myspace.com/rare_lung_disease

If you'd like to send me an essay on your experiences living with HPS - either as a patient or a loved one - send it to: hkdawn@yahoo.com.
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