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I'm home!

I am soooo tired! It's going to be a long week having not had a break on the weekend, but it's all worth it. I have such a backlog of posting to do. I want to update everyone on the board meeting and get those music clips up etc. I just can't do it tonight. I'm about to fall over I'm so tired.

I will say shortly that we had two very nice ladies come to part of the board meeting that may be interested in consulting with the Network on our public relations and fundraising efforts. I've been doing a lot of our PR, but working a full-time job and all of my other Network duties - I really don't have the time or resources right now to do it at the level we need. The Puerto Rico affiliate was able to recruit a professional public relations person and it's done wonders for them there. Also, the Network has never been great at fundraising. The trouble is most families affected by HPS have a lot of financial challenges for a lot of different reasons. To raise the sort of money we need at this point in our development, we've really got to get better at tapping outside resources, like corporations. We need some professional direction on how to do that better.

So, as part of this project, I've posted a brief survey to both listservs. Thanks to those that have answered it. To everyone else, this is really important so please, please do so. I'll also post it here tomorrow for those that follow the blog, but aren't in the listservs. We really need as many responses as we can get.

I'll explain the reasons behind the questions after we get the answers in - I don't want to say too much that would affect the way people answer.

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