Skip to main content

The great flying whine

There once was a time when I loved flying. I loved flying anywhere. I loved being on a business trip like a grown up, staying in a hotel where someone else makes the bed, and seeing new places, even if only for a glimpse. I loved having several uninterrupted hours to sit in one place and think, or read, or write with no guilt that I should really be doing something else. Now, I hate flying. It’s gone from a pleasurable experience to a miserable one.

I’m not griping about security. I truly recognize the importance of the screening process. But, nowadays it’s just such a chore, especially if you travel with a lot of medical “stuff.” I’m now resigned to the fact that I will have to ask for airport assistance from now on. I’ve always been sort of proud of my great orientation and mobility skills. I’ve always been able to figure out airports, even if I couldn’t read the gate signs, by just using a little logic and asking a few questions along the way. Now, however, it takes me a good half hour to get through security even if I ask for help and they move me to the front of the line. If I don’t ask for help, I’m risking missing my flights.

The whole process is just exhausting. You tug off your shoes (I know wear slip on clogs to make this easier), remove your coat and jacket, wrestle for one of those gray tubs to put everything in, try to unzip the laptop bag without everything falling out while still balancing all your other belongings – and then now I have to remove my entire CPAP and take it completely apart for inspection. I usually stuff my medication and ostomy supplies in the CPAP bag, so as the machine is removed the little bottles go rolling all over the place and you can’t help but wonder if you’re going to arrive at the final destination with everything.

I arrive at the gate feeling as though I’ve just had a work out.

This trip I didn’t get to fly my beloved Midwest Airlines. Instead, I had to take Northwest. It was adequate. The plane didn’t crash after all. The personnel were all very helpful and friendly. But those seats! It’s amazing the flying public hasn’t had more of a revolt about airline seats!

Granted, I’m not a small person. I’ve got a big butt and I’m tall. But, I’m not much taller than the average man. I was almost glad my flight wasn’t direct just so I had a chance to get up and move my legs after being wedged into a three-person row so tightly that it was next to impossible to move. My knees have bruises on them from being jammed into the seat in front of me. My joints were acting up because they just tend to do that if I don’t move around every so often.

Besides wedging human beings into a long flying tube as tightly as possible, these days you also don’t seem to get fed. My connection was too tight to stop and buy anything. On the way to New York, I was offered a “snack pack” for five bucks that did help to tide me over a bit – even though about half of its contents weren’t very ostomy friendly. But on the way home no such offer was made. I arrived home having only eaten the muffin I had for breakfast.

Donna had offered me a banana at breakfast that I declined as I was trying to keep the “poo” at a certain “level” for traveling. I should have taken it and put it in my bag for later! Grin!

But, I’ll still fly. It beats staying home.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria