Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria
Here's another picture from the Puerto Rico Conference trip. Pictured here are Donna and Alissara. Alissara is an HPS'er that could use everyone's prayers right now. She's in her late 20s, has two small children, and needs a lung transplant. Her family are incredible. They've had numerous fundraisers trying to raise the money for the expenses that can't be covered by insurance. Like many people that seek a transplant, Alissara will likely have to move away from the friends and places she knows to be near a transplant center willing to work with her. She's one of the brave people paving the way for the rest of us who may one day also need a lung transplant. (Thanks to Dr. Markello who took the picture!)
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