Skip to main content

I am not a happy camper today

This weekend hasn't been the best one ever in the health department. This back pain is really something else. Kevin sent me home with a whole host of new scripts, among them Oxycodone for the back pain. The pain management is a bit of a challenge because I can't take anti-inflammatories because they cause bleeding, and I can't take stuff with morphine because I'm allergic.

The Oxycodone seems to be working very well for the back pain (which they now think is related to the bowel flare up and not the kidneys.) It doesn't knock it totally out, but it does soften it to a annoying, but bearable, dull ache as opposed to a sharp, shoot-me-now-I-can't-move pain. But, I think the drug is giving me constipation. I need to ask if this is possible. It definately irritates my tummy, but suddenly in the last two days I've only emptied my pouch three times and I've got pretty bad cramps in my belly. Usually if I'm not having the runs I empty it four or five times a day. The output is black like coal and thick.

I ended up spending the weekend with Ryan, which was a blessing I hadn'd expected. I was feeling well enough that we went out with Julie for a few hours, but I came home and slept after that.

I was unable to get any work done and I'm so worried about this next week at work. I'm so behind, and I don't expect these pain and bowel issues are going to be easily cured. I'm a bit worried about how I'm going to do at work. Right now siting at the computer is quite painful.
Labels:

Comments

Post a Comment

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for
1 comment
Read more

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Post a Comment
Read more

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria
Post a Comment
Read more