Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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As many of you know, Dr. Merideth was interviewing women with HPS about their OBGYN histories in hopes of getting a better understanding of the challenges HPS women face, and how to best treat them. She had a "runner" to go and get women when it was their turn. So we could see her, she carried around this large orange poster board.
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