Here Dr. Gutentag presents her research results. Dr. Gutentag is actually a neonatologist (baby doctor) who specializes in the breathing problems of premature babies. She's been studying surfactant, a substance that lubricates the lungs so they can expand and contract more easily (think of it like the grease you use to oil a creaky door.) That work got her interested in Hermansky-Pudlak Syndrome. She found that while HPS'ers have enough surfactant, we seem to have a hard time releasing it. Dr. Gutentag is one of the reasons we all really need to be pushing for adaquate funding of the National Institutes of Health. HPS isn't her primary research - but she's able to help us out even though we can't give her a big grant because the rest of her lab work is so well funded by the NIH. She says those grants are getting harder and harder to get, however, and so her research is sort of stalled out for need of funding. She seemed like she needed us to inspire her again at conference. We love you Dr. Gutentag! And we're pushing for that funding!
Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for
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