This was registration at last year's conference. The woman in the front with the curly hair is an HPS legend. Her name is Carmen and she's quite a character. It never takes long to find Carmen at conference. She was in the first drug trial, is still on the medication, and is still here and kicking long after anyone expected her to be. I'm convinced it's because of Pirfenidone. She's lost two siblings to HPS, however. I feel as though I owe Carmen a huge debt of thanks. If it weren't for her and the others that went first, I wouldn't be able to be in the Phase III trial of Pirfenidone now.
Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for
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