I’ve featured some things from the Genetic Alliance here before – okay I’ve featured a lot of things from the Genetic Alliance lately. And, here I go again.
Right now on the opening page of the Genetic Alliance Web site you can view the Leadership Exhibit. This was an exhibit honoring some of the world’s leading genetic disorder advocates. Each and every honoree is amazing and could be the subject of a book in their own right (and boy would I like to write that book! Don’t even get me started!!!)
The exhibit includes some of our favorite leaders in the Hermansky-Pudlak Syndrome community. Crystal and Candice Sipe were honored in the exhibit, as were Donna and Ashley Appell. There are also honorees you might know from the National Organization for Rare Disorders (NORD).
The Web site version of the exhibit is a little hard for me to read. They plan to feature an advocate every few weeks on the page, but when you click through to see the panel, it’s hard to read. Well, then again, I’m legally blind – but still, it needs to be larger. And, you can view the entire slide show, but I can’t figure out how to slow it down enough that I can read about each person. Again, perhaps just not legally blind friendly.
Still, I recommend you check it out at http://www.geneticalliance.org. It’s a great reminder that no matter how rare our diseases are, we’re part of a big community and have a lot to share and learn from one another.
Right now on the opening page of the Genetic Alliance Web site you can view the Leadership Exhibit. This was an exhibit honoring some of the world’s leading genetic disorder advocates. Each and every honoree is amazing and could be the subject of a book in their own right (and boy would I like to write that book! Don’t even get me started!!!)
The exhibit includes some of our favorite leaders in the Hermansky-Pudlak Syndrome community. Crystal and Candice Sipe were honored in the exhibit, as were Donna and Ashley Appell. There are also honorees you might know from the National Organization for Rare Disorders (NORD).
The Web site version of the exhibit is a little hard for me to read. They plan to feature an advocate every few weeks on the page, but when you click through to see the panel, it’s hard to read. Well, then again, I’m legally blind – but still, it needs to be larger. And, you can view the entire slide show, but I can’t figure out how to slow it down enough that I can read about each person. Again, perhaps just not legally blind friendly.
Still, I recommend you check it out at http://www.geneticalliance.org. It’s a great reminder that no matter how rare our diseases are, we’re part of a big community and have a lot to share and learn from one another.
Comments
Way over to the right, underneath where it says Gaka abd tge datem there are buttons that say Play, Pause, Previous and Next. These allow you to navigate the slide show. Once you click on "Pause" it stays on that there until you click on play or previous or next. Likewise, you can click next continuously to bypass others. Otherwise, it goes too fast to read and the colors of the backgrounds are not always good for the colors of the fonts.
I hope this helps.