I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Comments
I think it is great that you are partaking in a study. It is unfortunate to hear you also have IBD. I have Crohn's Disease myself.
I would love it if you considered joining a forum I run for others affected by IBD. www.crohnsforum.com is where we share a lot of support, information and some fun.
Please check us out and I do hope you join us soon.
Take care and good luck with the trial,
Michael