I got an e-mail from Kevin this morning. It looks like we’ll be able to do the repeat of the pulmonary function tests at NIH as an outpatient while I’m in town to go to the Genetic Alliance meeting for the HPS Network. Yeah!
It isn’t that I don’t think KUMed can do a simple pulmonary function test. It’s just that if I do it there, I won’t get in for another month, and if the result is under 85 I’ll just have to do it again at NIH anyway. This way we can cut to the chase and find out if I’m in the ball park for this clinical trial.
This darn FVC of 69 has been hanging over my head, especially this week with all the heat and humidity. I’m really noticing an impact on my breathing – as opposed to the usual summer misery that comes with heat.
The other great thing about this arrangement is that I’ll have the test on Thursday, and then be with Donna and Ashley, and probably the Washington, D.C. HPS gang for the conference. So, I’ll have some support should things not go well as opposed to being at home by myself.
It isn’t that I don’t think KUMed can do a simple pulmonary function test. It’s just that if I do it there, I won’t get in for another month, and if the result is under 85 I’ll just have to do it again at NIH anyway. This way we can cut to the chase and find out if I’m in the ball park for this clinical trial.
This darn FVC of 69 has been hanging over my head, especially this week with all the heat and humidity. I’m really noticing an impact on my breathing – as opposed to the usual summer misery that comes with heat.
The other great thing about this arrangement is that I’ll have the test on Thursday, and then be with Donna and Ashley, and probably the Washington, D.C. HPS gang for the conference. So, I’ll have some support should things not go well as opposed to being at home by myself.
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