Skip to main content

Going South

Please don’t be alarmed if you don’t see a few posts for a few days. I’m going to try to post over the weekend, but not sure if I’ll have access or time. I’m going to cover the first major, citywide convention and trade show to be held in New Orleans since Katrina.

It’s an exciting opportunity. It’s not very often, unfortunately, that I get to cover stories in person. I’m a bit nervous though because I feel like I’ve got a lot of loose ends. Usually when you go to a show, you register weeks in advance and get a nice neat schedule of where you’re supposed to be and when. For this event, however, everything came together to allow me to go at the last minute. I don’t have a schedule and I’ve got a very short time to interview a lot of people.

As great as I’d been feeling lately, these past two days haven’t been good ones. I’ve been sick to my stomach at night, the joint pain is worse, and while my tummy feels better during the day I do feel super tired all of a sudden. All I really want to do is take a nap!

I am excited about New Orleans though. New Orleans is one of my favorite cities, even if it always had a lot of poverty and doesn’t always smell so great in places. It’s a city that you can’t confuse with any other American city. It has its own vibe, own culture and plenty of color to give it character.

I first went to New Orleans when I was barely 18 years old. I was a student at the Louisiana Center for the Blind and they were hosts of the National Federation of the Blind convention that year. I learned my Braille numbers by brailling the hotel room numbers of four large hotels! (this was before they put them in for ADA.)

That week was a life changing week for me. I’d never known blind adults as role models, and suddenly I met 3,000 of them all at once.

The next time I was in New Orleans was a very romantic week I spent there with Peter. We poked around in the French Quarter, took the trolley to the Garden District and took a riverboat up the Mississippi and toured old Southern plantations around the city.

And the last time I was in New Orleans was only a few weeks before Katrina hit. I was covering the National Association of Consumer Show organizer’s national meeting. We were served foo-foo food by waiters in tuxes on the floor of the stadium before we were whisked away for an elegant dinner in the French Quarter. As the hurricane hit, and the stories started to emerge, I still had those pictures on my camera.

So, I’m anxious to see New Orleans again and get a first hand look at just how well she’s recovered.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria