Thanks to everyone who’s been asking about the cough. This is going to be brief because it’s late, and I’ve GOT to get to bed. Yes, I’ve STILL got the cough. The allergy medicine seems to help, but as you know, it makes me really sleepy all the time. I was torn about whether I could just put up with the cough and be more alert, or whether all that coughing is perhaps a signal that even if the cough is an allergic reaction, it still might be stirring things up in the lungs, sort of speak. I consulted with a variety of my “medical brain trust” and there seemed to be no conclusive answers. They seem to be split down the middle. So, I’m choosing to take the medicine, even though it really is mucking with my life right now, to try to quiet the cough. It doesn’t completely get rid of the cough – it just makes it less constant. If this situation doesn’t improve by mid-June, however, we’re going to have to pow-wow again.
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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