Skip to main content

Newsflash: Heather crosses street - and lives to tell about it

Apparently I have “helpless” stamped on my forehead today. Is there some radio station contest I don’t know about, or maybe show on TV? I’ve had multiple strangers try to help me today - only trouble is they’ve wanted to help me with things I either don’t need or don’t want.

This morning I tried to catch the 7:00 a.m. bus to work in hopes of getting into the office early and getting a head start on things. I just missed the bus, and rather than stand on the corner for a half hour, I walked down to McDonalds and got an egg sandwich (there goes the diet already!). As I stood outside near the McDonalds I had not one, not two, but three people try to stop and offer me a ride or give me directions.

I know that to most of you that sounds very nice, and I have no doubt that these were the most kind-hearted souls who really wanted to help me – but I wish I could redirect their enthusiasm.

One lady almost caused an accident on Metcalf because she stopped right there in the middle of the street and proceeded to yell out her car window at me from across the road. I couldn’t even really hear her over the traffic. The other two pulled into the McDonalds parking lot, got out of their cars, and tried to help me assuming that a blind person standing on the street must surely be lost and couldn’t possibly know what she was doing.

I assure you that if I were lost I would not simply stand on the street and wait for random cars to stop and rescue me. If I were lost, blind as I am, I might actually wander into one of many, many businesses lining the street and ask for directions.

This is one of those blindness things that gets on my nerves. Several times a week some enthusiastic do-gooder comes bounding up to me as I wait for a light to change determined to help me cross the street. It cracks me up because typically I’ve walked several blocks, if not even several miles, before reaching that given light. How do they think I arrived at the streetlight? Perhaps beamed in Star Trek fashion?

Now, there are probably some of you reading this that think I’m just too much of a cranky, uppity blind chick and I ought to be more gracious and accept the help, even if I don’t want it. Here’s the problem with that.

It’s the attitude that a blind person walking down the street couldn’t possibly know where she is that is the reason there’s a 70 percent unemployment rate among working age, legally blind adults. That do-gooder, when they’re sitting across the interview desk from you, takes those same false beliefs about the abilities of blind people and applies them to the work place.

This is why I am so dreading job hunting – and partly why I’ve been in the same job for eight (almost nine) years.

I graduated from journalism school at the top of my class. I had a portfolio full of work and several internships under my belt. But as the months rolled by and all my classmates found jobs – I remained unemployed. It took me a year to find my first job, and even then it was a part-time job. I survived on Supplemental Security Income, picking up some freelance work (when you get assignments over the phone no one knows you’re blind) and selling some of my artwork.

It was a horrible time in my life. The people that knew me best, and that I should have been able to count on for support, were convinced I just wasn’t trying hard enough. They couldn’t imagine how the Heather they knew wasn’t employable. I, however, endured multiple interviews where I was asked questions such as, “If you worked in our newsroom, would you need help finding the restroom?” Or, “If you worked in our newsroom, will you need a guide to get around?” Or, the classic, “Oh I’m sorry; we require all of our reporters to be able to drive.” (Sometimes a reasonable requirement, and sometimes not)

Those well-meaning people and their misplaced desire to do good to their fellow man are not harmless. But, how do take an instant at a streetlight and turn it into a teachable moment without sounding bitter and crabby?

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria