My dad and his wife have been gone a few days now and gradually Fin and I are working into the rhythm of a new normal. I think it might take months to find a home for everything. If I did nothing but put things away, it would probably be finished in a few days, but I have so much else to do! There is so much ahead that if I think about it, it is just overwhelming. So, I’ve been putting tasks on small note cards. I pull one out, work on it until it is finished, and then enjoy the satisfaction of ripping up the card. It might not be a permanent ritual, but it is working for now. My allergies have been horrible! My eyes water. My nose is stuffy and running. I’m coughing again. I itch from head to toe. I’ve been truly ill in my life, and I’m here to tell you allergies can make you down right miserable! The four allergy medications and three inhalers I’m using to keep things manageable do an okay job, but I’m not sure if that’s because they help, or if they just make me so tired and loopy I
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life