Living on the frontlines

We added a new member to the patient registry today. This now puts us at 36 to go on this year's Hundred People Search. 

The National Organization for Albinism and Hypopigmentation (NOAH) is offering a $3,000 scholarship award for undergraduate study at an institution in the United States or Canada. The Michael J. McGowan Leadership Scholarship Award was established in 2008 on behalf of NOAH to recognize leadership and empower young people with albinism. To learn more or to apply, go to: http://scholarship.albinism.org/

We've added another new person to the patient registry. This now puts us at 37 to go on this year's Hundred people search! 

The HPS Network is a sponsor of the Zing Conferences’ Lysosome Related Organelles Conference, to be held Feb. 13-16, 2014 in Nerja Malaga, Spain. Lysosomes are compartments inside cells that dispose of cellular waste as well as digest some compounds. Lysosomes are affected in those with Hermansky-Pudlak Syndrome (HPS). Scientists interested in diseases read more

We've added one new member to the patient registry - that puts us at 38 to go on this year's Hundred People Search  -  H.P.S. 

Dr. Bernadette Gochuico, a pulmonologist from the National Institutes of Health studying Hermansky-Pudlak Syndrome (HPS), spoke at the conference of the Pulmonary Society of Puerto Rico in November. She was invited by Dr. Luis Nieves , President of the society. The opportunity came about after read more at:  https://www.hpsnetwork.org/en/news/2014-01-03/gochuico-speaks-at-pulmonary-society-of-puerto-rico