The following is a link to a video clip I found very interesting. There are so many challenges to finding better treatments/cures for rare diseases besides just the fact that they are rare. This interview touches on many of them. We have a lot of advocacy work to do on these issues. (This was also in the NORD - National Organization for Rare Disorders) e-newsletter.
http://www.wusa9.com/video/default.aspx?bctid=646414294001
http://www.wusa9.com/video/default.aspx?bctid=646414294001
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