Skip to main content

Finally, some productivity

It's funny how excited I can get about little things in life. I've now gone 24 plus hours with no code brown - yippee!

And, yesterday I got a TON done, both for HPSland and for me personally. I felt so great when I went to bed last night.

Donna and I are working on the conference program. I'm working on several new articles for the Web site and got some edits back from Donna last night. So, now I'm making changes there and sending the copy back for a final approval before sending it to translation.

I worked some on a grant yesterday.

I talked to no fewer than seven HPS'ers about various issues - some related to projects and some related to needs.

Donna and I spent some time going over a very basic explanation of lung anatomy that I wrote up to use as an educational tool.

I made contact with two potential vendors for conference - and didn't get a no from either one. I don't have a yes yet, but I don't have a no either.

I did two rounds of dishes, baked a casserole, put away the last of the Christma decorations and did a load of laundry. I also went through two boxes of old records I'm going through trying to make more space in my office and threw away two trash bags of shredded paper. I wish I had a way to get it to recycling.

Oh, and I even got to treat myself to a nice walk yesterday.

Talk about feeling happy!

Today, even though I slept well last night, I was mush this morning. I made some phone calls trying to get documentation sent to the right places for my disability claims etc. I felt like I spinned my wheels. Then I went to do some cleaning in my bedroom and fell asleep for an hour - very frustrating.

I've still got the runs, even if I've been spared a code brown, so I made some herbal tea (getting sick of water) and made a pitcher of ice tea out of it. I drank own the whole thing and started to feel better.

Now I'm working on HPS projects - although I'm feeling tired this evening. I'm trying to make myself remain productive. There's so much to do!!!!!
Labels:

Comments

Anonymous said…
Hey Heather!

We can't wait to see you at conference next month. We are anxiously counting down the weeks. We are really excited! We'll try to call and catch up sometime soon. Glad you had a productive day. It's good to hear your feeling a little better. Take Care, Candice & Crystal
9:48 PM
Post a Comment

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for
1 comment
Read more

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Post a Comment
Read more

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect
Post a Comment
Read more